Thanks so much Sakura! Im proud of you too for staying positive and motivating others to do the same!
Well all the doctors I've seen know I have Sjogren's syndrome which they cant argue with because its biopsy proven, but most of them don't believe that Sjögren's syndrome would cause my fatigue. Luckily the neurologist I saw and the rhuematologist both readily admitted that it can cause fatigue, but they wanted more tests to rule out anything additional that may have been missed.
I also wanted to scream at that GP- it made me so mad! Oddly enough she is one of the most caring doctors, even people I've ever met, I just think at the time she severely misjudged my fatigue and its causes, maybe she thought she was "helping" by being blunt and saying that, I dont know. Knowing my history with social anxiety maybe she just thought it was that, combined with a teenage sleep schedule. However now that I'm not a teen anymore I still have persistent sleep issues so she knows its not that. I still see her, she's gotten more understanding now and has never said that again. One of the things I might have is narcolepsy, it is tested for with a series of day time naps in a sleep clinic after an overnight sleep study. I had two sleep studies ordered by another doc several years ago, both times they were supposed to do the daytime narcolepsy test and both times they screwed up and didnt do it. Recently I saw that GP after a long time I asked her if the narcolepsy test could be done, and she agreed it should be done and ordered it right away! She said she knows how much the fatigue is weighing on me and she wants to help, so between her being more understanding and the new rheumatologist being so thorough I feel more confident about getting the right additional diagnosis if any, as well as the right treatment!
Good luck and *hugs*!